Hands on a Miracle: Everythings Bigger in Texas!

Thursday, October 23, 2008

Everythings Bigger in Texas!

You have not lived until you have had a foot long deep fried corndog while listening to Honeybrowne play Texas Angel live in the background. We had a great night, Bryan and YaYa even did a little two-steppin....figure I better get it out of him now before he is horrified at the thought of being seen in public with me....much less dancing!!!!

Seriously, it was a beautiful night....clean, crisp air - which is a change from the hot muggy humid weather which is norm for South Texas. The wind off of the water was even a little nippy. Bryan had a great time, and enjoyed EVERY LAST BITE of his foot long, deep fried, heart attack on a stick (stick removed for safety, of course!).

And of course, Aunt Cathy worked the beer booth!

We THOUGHT he was tuckered out and so left to take him home for a much needed bath and bedtime....turns out it was YaYa and Grampa who were worn out. After a short nap on the ride home in Grampa's Mack truck, Bryan got his second wind and entertained the whole family until it was way past everyone's bedtime. We can watch this kid for hours!

Time seems to stand still when Bryan is there....everyone stops what they are doing to entertain him, or more so these days...be entertained by him. We can never get enough. Hope you enjoy the video and pics as much as we enjoyed being there!

2 comments:

Destini said...: I can't believe he ate the entire corn dog! I love all the pictures, but he makes an adorable cowboy!; October 23, 2008 at 10:06 PM
Kim said...: I love the video! He was so intent on that corndog it was priceless!
The picture of him in the monkey shirt and cowboy hat-oh Candi I just want to reach in and grab him he is so freaking cute!; October 24, 2008 at 9:50 PM

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Support for New Parents

If you have come across my site because you are a new parent of a child diagnosed with dwarfism, I encourage you to check out Tonya's site - "What is Normal?". I cannot say enough about the great work she does educating and supporting parents of children with dwarfism. "What is Normal?" is full of great information on dwarfism of all types and if the information is out there Tonya more than likely has a link to it. She is a wonderful advocate for our children so please don't forget to thank her if you find something useful on her site.

Achondroplasia

Achondroplasia is a common, nonlethal form of skeletal dysplasia (dysplasia - not normal), or a genetic disorder of bone growth. Depending on who you ask, statistics say that one in 25,000 to one in 60,000 births will result in Achondroplasia. Achondroplasia is one of the oldest recorded birth defects, dating back to the Roman Empire. It is characterized by abnormal body proportions — affected individuals have arms and legs that are very short, while the torso is more nearly normal size, and in some cases individuals have larger heads due to "frontal bossing".Before beginning to walk, a baby with achondroplasia often develops a small hump (kyphosis) on his lower back. This is due to poor muscle tone, and usually goes away after the child starts walking. Once walking, the child usually develops a markedly curved lower spine (lordosis or sway- back), and the lower legs often become bowed. The feet are generally short, broad and flat.Achondroplasia is caused by an abnormal gene located on one of the chromosome 4 pair (humans have 23 pairs of chromosomes).

In some cases, a child inherits achondroplasia from a parent who also has the condition. If one parent has the condition and the other does not, there is a 50 percent chance that their child will be affected. If both parents have achondroplasia, there is a 50 percent chance that the child will inherit the condition, a 25 percent chance that the child will not have it, and a 25 percent chance that the child will inherit one abnormal gene from each parent and have severe skeletal abnormalities that lead to early death. A child who does not inherit the gene will be completely free of the condition, and cannot pass it on to his or her own children. In more than 80 percent of cases, however, achondroplasia is not inherited but results from a new mutation (change) that occurred in the egg or sperm cell that formed the embryo. The parents of children with achondroplasia resulting from new mutations are usually normal-sized.

The gene that causes Achondroplasia was only discovered in 1994, a mere 13 years ago, so much research is still being done to learn more about it. The gene is one of a family of genes that makes proteins called fibroblast growth factor receptors. Scientists have recently linked these genes with several skeletal disorders. While scientists are eagerly studying these mutations, there is much controversy from society at the outcome of the studies. Since the discovery, many couples have chosen to terminate pregnancies because of this.

A few notes: Intelligence is entirely normal in people with achondroplasia. The term "midget" is considered offensive in this day and age. The acceptable terms for a person with any type of dwarfism are person with dwarfism, little person, LP, and person of short stature, or simply by their name, as you would address anyone else. If you would like to know more: http://www.lpaonline.org/mc/page.do

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Thursday, October 23, 2008

Everythings Bigger in Texas!

2 comments:

Support for New Parents

Achondroplasia