Hands on a Miracle: Gone

Thursday, June 19, 2008

Gone

Brandy and Bryan are gone. She doesn't want to live with us anymore, so she has taken Bryan and left. I hope she finds what she's looking for.

My heart is breaking. Our house is empty. What will I do without him to greet me every day when I come home.

6 comments:

The Johnson Family 5 said...: :( My heart is breaking for you! I will keep you all in my prayers and hope that it all works out for the best!! Big hugs from North Texas to South Texas! (Houston is South Texas...right??); June 19, 2008 at 7:06 PM
Jennifer said...: Oh Candi, oh my gosh. My heart is bleeding for you. I will pray with all my might for all of you. Remember that God is the ultimate care giver and He will keep watch over your precious grandson. Much love and many prayers.; June 19, 2008 at 8:37 PM
Catherine Merciez Wright said...: Oh my God Candi! How devestating! Do you need anything?
Cat; June 19, 2008 at 8:39 PM
Unknown said...: I am so sorry Candi, I can't imagine how you feel right now. I hope that Brandy comes to her senses soon. I am praying for you and Bryan. I hope he brings you together soon. If you need anything please do not hesitate to call me, Love you. Melissa; June 20, 2008 at 9:21 AM
Candi and Skeet said...: I am so sorry! I really don't know what else to say. I can only imagine how much your heart is breaking. I will be thinking of, and praying for, you!

Love,
Candi; June 20, 2008 at 9:36 AM
Kim said...: Candi,
I am so sorry. I hope Brandy realizes that keeping Bryan away from you will only be detrimental to him as you have been such an integral part of his life. I am hopeing that it all works out. Hugs from Preston and I.; June 23, 2008 at 8:02 PM

Support for New Parents

If you have come across my site because you are a new parent of a child diagnosed with dwarfism, I encourage you to check out Tonya's site - "What is Normal?". I cannot say enough about the great work she does educating and supporting parents of children with dwarfism. "What is Normal?" is full of great information on dwarfism of all types and if the information is out there Tonya more than likely has a link to it. She is a wonderful advocate for our children so please don't forget to thank her if you find something useful on her site.

Achondroplasia

Achondroplasia is a common, nonlethal form of skeletal dysplasia (dysplasia - not normal), or a genetic disorder of bone growth. Depending on who you ask, statistics say that one in 25,000 to one in 60,000 births will result in Achondroplasia. Achondroplasia is one of the oldest recorded birth defects, dating back to the Roman Empire. It is characterized by abnormal body proportions — affected individuals have arms and legs that are very short, while the torso is more nearly normal size, and in some cases individuals have larger heads due to "frontal bossing".Before beginning to walk, a baby with achondroplasia often develops a small hump (kyphosis) on his lower back. This is due to poor muscle tone, and usually goes away after the child starts walking. Once walking, the child usually develops a markedly curved lower spine (lordosis or sway- back), and the lower legs often become bowed. The feet are generally short, broad and flat.Achondroplasia is caused by an abnormal gene located on one of the chromosome 4 pair (humans have 23 pairs of chromosomes).

In some cases, a child inherits achondroplasia from a parent who also has the condition. If one parent has the condition and the other does not, there is a 50 percent chance that their child will be affected. If both parents have achondroplasia, there is a 50 percent chance that the child will inherit the condition, a 25 percent chance that the child will not have it, and a 25 percent chance that the child will inherit one abnormal gene from each parent and have severe skeletal abnormalities that lead to early death. A child who does not inherit the gene will be completely free of the condition, and cannot pass it on to his or her own children. In more than 80 percent of cases, however, achondroplasia is not inherited but results from a new mutation (change) that occurred in the egg or sperm cell that formed the embryo. The parents of children with achondroplasia resulting from new mutations are usually normal-sized.

The gene that causes Achondroplasia was only discovered in 1994, a mere 13 years ago, so much research is still being done to learn more about it. The gene is one of a family of genes that makes proteins called fibroblast growth factor receptors. Scientists have recently linked these genes with several skeletal disorders. While scientists are eagerly studying these mutations, there is much controversy from society at the outcome of the studies. Since the discovery, many couples have chosen to terminate pregnancies because of this.

A few notes: Intelligence is entirely normal in people with achondroplasia. The term "midget" is considered offensive in this day and age. The acceptable terms for a person with any type of dwarfism are person with dwarfism, little person, LP, and person of short stature, or simply by their name, as you would address anyone else. If you would like to know more: http://www.lpaonline.org/mc/page.do

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Thursday, June 19, 2008

Gone

6 comments:

Support for New Parents

Achondroplasia