Hands on a Miracle: Laissez les bon temps roule!

Friday, April 11, 2008

Laissez les bon temps roule!

They call him the Crawfish Kid....badder than Billy, with a much better gun.

Last Saturday Bryan attended his crawfish boil! We had so much fun, THANKS Sharon and Jimmy! YaYa and Brandy ate crawfish til they couldn't eat anymore, and for those of you who are wondering....No, Bryan did not suck the head. :0)

He did have fun playing with mudbugs though. I hope Brandy checked his pockets before she put his laundry in the hamper. :0) He also got a turn in the moonjump with Brandy. Fun, fun, fun!

6 comments:

Jennifer said...: Bryan, you are just too darn cute! Such a happy boy. I think he's got the biggest, most beautiful smile ever!

And, what the heck is a crawfish boil? And sucking off the head.....???!!! Yikes.; April 11, 2008 at 7:43 PM
Kim said...: Bryan is soooo cute! That smile is to die for! Wow I am so Northeast that I have never been to a crawfish boil! I'm glad he enjoyed it!; April 12, 2008 at 1:17 PM
Anonymous said...: Hi Jennifer. It's a Louisiana tradition that has spilled over into Texas. You boil crawfish, corn on the cob, sausage and potatoes with spices, then throw it all out on a table and everyone peels and eats at the same time. The best part of the crawfish (or so they say) is in the head, so after you pull the tail off tradition says you "suck the head" to get all the goody out. If you ever make it to Texas, we will def. have to introduce you! More than anything, it is a BIG PARTY..where everyone eats way too much and laughs and tells stories and a good excuse to get together. Hope this clear things up..LOL.; April 13, 2008 at 7:31 AM
The Johnson Family 5 said...: We went to our first crawfish boil last summer before Cole was born and boy was it fun!! I'm so sad to miss it this year!! Our friends are having one the same night we have other plans...such a bummer!!! Maybe next year! Bryan looks so cute with his little friend!; April 13, 2008 at 9:24 AM
Jennifer said...: Thanks for the explanation! I will take you up on the invite to Texas some day. I'm dying to get my hands on that boy. I'm liable to squeeze him silly. Still can't picture myself sucking the head off a crawfish.....eeewww!; April 14, 2008 at 5:38 PM
Tonya said...: Sucking the head off a crawfish? Where did I think it was like eating Lobster?!

Bryan is just too cute!! Glad he had fun in the bouncer...See YaYa, I told ya nothing would happen :); April 17, 2008 at 8:56 PM

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Support for New Parents

If you have come across my site because you are a new parent of a child diagnosed with dwarfism, I encourage you to check out Tonya's site - "What is Normal?". I cannot say enough about the great work she does educating and supporting parents of children with dwarfism. "What is Normal?" is full of great information on dwarfism of all types and if the information is out there Tonya more than likely has a link to it. She is a wonderful advocate for our children so please don't forget to thank her if you find something useful on her site.

Achondroplasia

Achondroplasia is a common, nonlethal form of skeletal dysplasia (dysplasia - not normal), or a genetic disorder of bone growth. Depending on who you ask, statistics say that one in 25,000 to one in 60,000 births will result in Achondroplasia. Achondroplasia is one of the oldest recorded birth defects, dating back to the Roman Empire. It is characterized by abnormal body proportions — affected individuals have arms and legs that are very short, while the torso is more nearly normal size, and in some cases individuals have larger heads due to "frontal bossing".Before beginning to walk, a baby with achondroplasia often develops a small hump (kyphosis) on his lower back. This is due to poor muscle tone, and usually goes away after the child starts walking. Once walking, the child usually develops a markedly curved lower spine (lordosis or sway- back), and the lower legs often become bowed. The feet are generally short, broad and flat.Achondroplasia is caused by an abnormal gene located on one of the chromosome 4 pair (humans have 23 pairs of chromosomes).

In some cases, a child inherits achondroplasia from a parent who also has the condition. If one parent has the condition and the other does not, there is a 50 percent chance that their child will be affected. If both parents have achondroplasia, there is a 50 percent chance that the child will inherit the condition, a 25 percent chance that the child will not have it, and a 25 percent chance that the child will inherit one abnormal gene from each parent and have severe skeletal abnormalities that lead to early death. A child who does not inherit the gene will be completely free of the condition, and cannot pass it on to his or her own children. In more than 80 percent of cases, however, achondroplasia is not inherited but results from a new mutation (change) that occurred in the egg or sperm cell that formed the embryo. The parents of children with achondroplasia resulting from new mutations are usually normal-sized.

The gene that causes Achondroplasia was only discovered in 1994, a mere 13 years ago, so much research is still being done to learn more about it. The gene is one of a family of genes that makes proteins called fibroblast growth factor receptors. Scientists have recently linked these genes with several skeletal disorders. While scientists are eagerly studying these mutations, there is much controversy from society at the outcome of the studies. Since the discovery, many couples have chosen to terminate pregnancies because of this.

A few notes: Intelligence is entirely normal in people with achondroplasia. The term "midget" is considered offensive in this day and age. The acceptable terms for a person with any type of dwarfism are person with dwarfism, little person, LP, and person of short stature, or simply by their name, as you would address anyone else. If you would like to know more: http://www.lpaonline.org/mc/page.do

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Friday, April 11, 2008

Laissez les bon temps roule!

6 comments:

Support for New Parents

Achondroplasia