Hands on a Miracle: How I Spent My Summer Vacation

Wednesday, August 6, 2008

How I Spent My Summer Vacation

The main reason I have not had time to write lately is that I spent my 3 days off in Ingleside with Bryan! He is awesome, and getting stronger every day. He is learning so much..he is army crawling and really using his arms a lot now. And his hair is growing like crazy - I actually got it cut on Sunday, so it's not so crazy now....but it all looks good on him....because he is always smiling.

I bought a new camera, so I will be posting LOTS of pics for a while and not much text. I added a few pics after Bryan to show you the beautiful beach (one of a few, actually) where I spent 5 fabulous days in California...no phone, no laptop...just my dearest friend, my new camera and time.

Enjoy!

7 comments:

Destini said...: Bryan is so adorable!!!! All of his pictures are so good I can't decide which one I like the best! What kind of camera did you get? I am looking into getting a new one and starting the research now.; August 6, 2008 at 8:31 PM
BRYAN'S YAYA said...: Destini,

I have been wanting a Canon XiT for a LONG time and also looked at Nikons. They are the best because they are housed in a hard titanium case. I settled on a Sony DSLR, only b/c I got a great deal. Great camera, not as durable if you hike, etc... Circuit City must have been discontinuing the model, so I got the camera, extra battery, carrying case, 70-300 mm (extra) lens, and tons of stuff from Snapfish, including a leather photo book, calendar, too much to mention...DSLR for dummies and 20 hours of free online training for under $700. So no Canon or Nikon - but I am very happy. I will be taking Bryan's pics now instead of Sears, etc. and saving a bundle. That was my schpill to myself to justify anyhow. :0) Aren't they cute?

Candi
YaYa to Bryan

P.S. I added your site to ours, hope that's o.k.; August 6, 2008 at 9:25 PM
Jennifer said...: LOVE the pictures! Candi, he couldn't possibly be any cuter! I'm so excited that he's crawling. Poor Brandy. The chase is on. But she'll love it I'm sure. She'll just be more exhausted!; August 7, 2008 at 8:09 PM
Caden and Mommy said...: Candi!
I am so happy you were able to spend some time with Bryan! Adorable pictures ... and very cool you got a new camera. I'm envious of some of the blogs out there ... I didn't realize what great pictures good cameras could take. I thought all digital was the same quality. I recently told my husband, "I think I want a new camera, like a Cannon" His reply was, "oh just a new camera ... do you know how much those go for?" So I'm thinking, okay not!
Trisha :o); August 8, 2008 at 2:02 PM
Kim said...: Bryan is ADORABLE! I mean really he is one cute kid! I am so glad you got to spend so much time with him!; August 12, 2008 at 12:45 PM
The Johnson Family 5 said...: I think Bryan is so stinking cute! I hope to get him and Cole together to play one day :) I'm looking at getting the Canon Rebel Xti...I can't wait to take some great new pics of my boy!; August 15, 2008 at 5:07 PM
Anonymous said...: He is too adorable! Thanks for putting up the photos!
Amanda & Parker; August 18, 2008 at 8:36 AM

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Support for New Parents

If you have come across my site because you are a new parent of a child diagnosed with dwarfism, I encourage you to check out Tonya's site - "What is Normal?". I cannot say enough about the great work she does educating and supporting parents of children with dwarfism. "What is Normal?" is full of great information on dwarfism of all types and if the information is out there Tonya more than likely has a link to it. She is a wonderful advocate for our children so please don't forget to thank her if you find something useful on her site.

Achondroplasia

Achondroplasia is a common, nonlethal form of skeletal dysplasia (dysplasia - not normal), or a genetic disorder of bone growth. Depending on who you ask, statistics say that one in 25,000 to one in 60,000 births will result in Achondroplasia. Achondroplasia is one of the oldest recorded birth defects, dating back to the Roman Empire. It is characterized by abnormal body proportions — affected individuals have arms and legs that are very short, while the torso is more nearly normal size, and in some cases individuals have larger heads due to "frontal bossing".Before beginning to walk, a baby with achondroplasia often develops a small hump (kyphosis) on his lower back. This is due to poor muscle tone, and usually goes away after the child starts walking. Once walking, the child usually develops a markedly curved lower spine (lordosis or sway- back), and the lower legs often become bowed. The feet are generally short, broad and flat.Achondroplasia is caused by an abnormal gene located on one of the chromosome 4 pair (humans have 23 pairs of chromosomes).

In some cases, a child inherits achondroplasia from a parent who also has the condition. If one parent has the condition and the other does not, there is a 50 percent chance that their child will be affected. If both parents have achondroplasia, there is a 50 percent chance that the child will inherit the condition, a 25 percent chance that the child will not have it, and a 25 percent chance that the child will inherit one abnormal gene from each parent and have severe skeletal abnormalities that lead to early death. A child who does not inherit the gene will be completely free of the condition, and cannot pass it on to his or her own children. In more than 80 percent of cases, however, achondroplasia is not inherited but results from a new mutation (change) that occurred in the egg or sperm cell that formed the embryo. The parents of children with achondroplasia resulting from new mutations are usually normal-sized.

The gene that causes Achondroplasia was only discovered in 1994, a mere 13 years ago, so much research is still being done to learn more about it. The gene is one of a family of genes that makes proteins called fibroblast growth factor receptors. Scientists have recently linked these genes with several skeletal disorders. While scientists are eagerly studying these mutations, there is much controversy from society at the outcome of the studies. Since the discovery, many couples have chosen to terminate pregnancies because of this.

A few notes: Intelligence is entirely normal in people with achondroplasia. The term "midget" is considered offensive in this day and age. The acceptable terms for a person with any type of dwarfism are person with dwarfism, little person, LP, and person of short stature, or simply by their name, as you would address anyone else. If you would like to know more: http://www.lpaonline.org/mc/page.do

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Wednesday, August 6, 2008

How I Spent My Summer Vacation

7 comments:

Support for New Parents

Achondroplasia